New resources to help axial SpA patients make decisions about medications
The National Axial Spondyloarthritis Society (NASS) has launched a new module for Your SpAce, to give people with axial SpA information and support to make decisions about their medication.
Created in partnership with people living with axial SpA and healthcare professionals, Your SpAce allows people living with axial SpA to engage with their condition, learn more about axial SpA, and build skills to manage the impact it has on their life.
The programme is free to access on the NASS website and YouTube channel. It includes co-produced, short informative videos and downloadable resources, so people living with axial SpA can create their own personalised toolkit. Alongside the new medication module, there are modules on pain, flares, and fatigue. These have been accessed over 25,000 times since they were launched last year.
Your SpAce provides a much-needed community for people who are at the start of their axial SpA journey or who are struggling and feeling isolated. Building a supportive community through monthly online meetups, which provide a relaxed way to connect with others living with axial SpA, share ideas and get support.
If you haven’t already, order a free promotional pack to signpost your patients, including postcards with a QR code and postcards to hand out. For more information, please contact zoe@nass.co.uk
You’re welcome to add some text and QR to the end of clinic letters to signpost your axial SpA patients. Here’s some suggested text:
Visit Your SpAce for information and support to manage your axial SpA and navigate your care. Visit: https://nass.co.uk/about-as/your-space
